MDA/MOVR Data Hub

The Muscular Dystrophy Association (MDA) wants to collect information about people with neuromuscular diseases to better understand their natural disease progression and ultimately improve their medical care, quality of life and survival. If you consent to participate in this study, you will be asked to provide clinical information from your medical chart so long as you are being followed at our clinic (you can withdrawal at any time). The information collected from your medical chart and provided by you will be stored in a protected database called the MDA MOVR Data Hub.